Thursday, 28 April 2016

Officially in adult clinic

April 4th 2016 was my last ever appointment with the Children and Young People's Team at my hospital. I'm now officially in adult clinic, I'm officially no longer a patient in Young People's clinic, the past 6 years of being under their care have come to an end, I'm now under a new team, and under a whole new hospital. It's, new people, a new train journey to get there, a different unfamiliar waiting room, a whole different atmosphere.

My diabetes has grown up with me in rapid succession in the last few years- as my time at Young People's clinic drew to a close, the hormones in my teenage body settled down and I no longer need as much insulin as before, I don't need as high a correction ratio as I did before, and the one who oversaw that was my consultant- he didn't only see my diabetes change and mature, but he saw me grow up. I was 13 when I had my first appointment with him, 18 when I had my last. I've left Young People's clinic an adult, but I honestly couldn't feel less like an adult in this.

I had transition clinic, I met the team and I met the consultant, and my old consultant told them about me and my history and he told them things that I didn't feel like explaining myself- and he did a wonderful job of it. The transition clinic was in January though, and when I had my last appointment with my old consultant, he asked me how adult clinic was...

"What adult clinic? How is it? I haven't even heard a single thing from them."

Yeah.

From January, until this month, I have felt like I'm not exactly sure where I belong, what hospital do I belong to now? I felt a bit like I was left to float about on my own for a while, until finally I got an appointment letter through for adult clinic a couple of weeks after my last appointment at Young People's clinic. The appointment is in June, with the diabetes nurse. This is one thing that feels a bit alien to me because, my consultant was my first port of call, not the nurses, as lovely as they are, I preferred talking to my consultant. I didn't really like the nurse clinic appointments, felt it was a bit pointless because the only person I ever properly opened up to about things I was struggling with in terms of diabetes in the team was my consultant. I just had that relationship with him.

Now? Now I have no relationship with the people who I'm now under the care of, and obviously that takes time. I think though, that they should follow up with a phone call or an email right after the transition clinic. The DSN did say she was going to email, but she never did. To really get that engagement from the young person, to build on getting to know this new person that's coming into your service, to start developing that relationship that will be so vital in getting anything out of anyone. So, I was a bit disappointed not to hear anything from them for those few months. All I can say is, don't expect me not to feel awkward and not say much at that first official appointment.

I'm sad I have officially transitioned to adult clinic, I love that team that I had, and they have done so much for me. I can't thank them enough. My consultant and I hugged and I gave one of the nurses a hug too and I couldn't say half the things I wanted to say to them there and then or I probably would have teared up so I wrote it down in an e-mail instead. My consultant replied to the e-mail and said he's learnt so much from me, and impressed with the way I've done my best to control my diabetes even though it's really hard. He is, and I told him this, probably the best consultant I will ever have.

We even had a selfie! I want to post it, but then again I don't just purely for privacy reasons for him and for my diabetes nurse.

So that's it, good bye young people's clinic, hello adult clinic...

2 comments:

  1. Oh man I remember my last day as a pediatric D. At the time I did not know the difference. That is because my last day was my first day. I was Dx'd as a 16 year old, so they tossed me on day 2 when the pediatric edno. came around and said "you know I only practice thru age 16 and you turn 17 at the end of the week so,," Oh well, she seemed nice. It was my 5th it's not you it is me break ups. Still it felt the same. LOL

    I referred your blog to the TUDiabetes blog page for the week of April 25th, 2016.

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